So lately people have asked me some questions and I figured I’d do a blog about all my issues! One blog which hopefully answers most questions and if any u can always message me!
So my first surgey was when I was 8 for tonsils and I remember waking on the table to this day the smell of the oxygen in The operating room and the doctors in scrubs with things down my throat, I tried to tell ppl but no one believes me said I dreamt it haha no I fucking didn’t, I wasn’t completely awake but I was awake! Then in 2000 i think I was 18 living in Hastings, I think I had ankle ligament reconstruction and a bone taken out after I had so many issues with my left ankle from a young age! No complications! I don’t think only that I’ve had issues with it since it sprains easier and is sore and swells if on it too long !! So then life seemed ok for me. Until I had my baby girl, I developed bad periods and pain and reflux so pills fixed that for a while until they thought it was my appendix in 2006, so a laparoscopic surgey done to look at that, and well they found more than they bargained for I guess the appendix was fucked up mucus like shit looking, I honestly wished I had pics lol 😂 anyhow they sent it off to get it checked, but me being me didn’t go back for the follow up appointment, it was a year later nearly I got a phone call saying they had found a tumour and I would need further surgery 😰! So went back in and they explained I had a weird rare appendix cystadenoma mucus thing and would need half my bowel removed to make sure it didn’t spread 😰😰 oh yes 1% they said and it had to be me! So a right hemicolectomy in 2007 then followed by a blood clot in the stomach after that surgery. I also was on warfarin for 6mobths and clexaine, I fell pregnant and had to have it terminated due to the high risks of a deformed baby or me dying, plus I couldn’t inject myself for 9months with the high risk, so they did a termination under general at Auckland hospital at around 12-14 weeks, was so so hard! ! In all this the pain never went and reflux got worse and worse so in 2015 they did a Nissan fundoplication for that and then half my spleen died! 2017 I had my endo surgey and well all the complications since have been one thing after another. I’ve had a colonoscopy and the put a small hole in bowel and then found out I also have a another rare shit sydrome serrated polyposis syndrome which means I’m at a high risk of bowel cancer than most. And also in all this they have found a mass on my liver, which is next to investigated I guess, after my current surgery of a total abdominal hysterectomy which I’ve just been released again from hospital awaiting a scan from a bad infection post op! Yep every surgey I have a complication! Seems I can’t catch a break health wise despite losing 60kgs and getting healthier I seem to be kinda cursed!
Oh I’ve also had kidney stones, I have asthma, and IBS/IBD AND I have high cholesterol which when I was obese told if I didn’t lose weight I would die! and also need bloods checked for lupus! My immune system is pretty shit I always get sick 🤢! So I think that pretty much covers my medical history! The downside is a lot of this could be passed on to my girl so she will have to be tested for the dvts- blood clotting, and also a few other things! But hey I’m alive, I’m strong I’m a fighter and I’ll beat whatever tries to drag me down!
Published by alirichardsblog
Hey I'm Ali This is my blog about
Weightloss and struggling with endometriosis..
There's so much more to endometriosis than meets the eye. Below the surface, living with endometriosis can mean days spent in bed, missed appointments, and alternate days when we seem "fine." We know that endometriosis comes with hundreds of possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't know the many symptoms we experience. For
13 years I waited to get a proper diagnosis, first was appendix, then pcoc poly cystic ovaries, I lived with that diagnosis for years until a doctor said I didn't have it. The past year has been hell constant pain, and wasn't until July 29th 2016 a specialist said "endometriosis " I've heard of it but had no idea what it was, she put me on hormones and a lot of pain meds to try help ease some of the pain, we are talking 30 x in hospital getting called a drug addict and I need mental help but in September I had a mirena inserted which fell out 2months later due to heavy bleeding, and then on a wait list for surgery when that failed. So now Im 2 -3weeks post op, my surgery was march 9th 2017, stage 2 endometriosis was removed, I've also developed a post op complication a large lump on my left side above a wound site a haematoma and I had to go back to hospital. But anyway endometriosis is way more than what people think, and there needs to be more info about it and more people made aware that it's not normal to be in pain.
Endometriosis is a medical condition that occurs when the lining of the uterus, called the endometrium, grows in other places, such as the fallopian tubes, ovaries or along the pelvis. When that lining breaks down, like the regular lining in the uterus that produces the menstruation, it has nowhere to go. This causes cysts, heavy periods, severe cramps and even infertility. And whole bunch more.
The endometrial tissue may also grow in the vagina, cervix, bowel or bladder, and in rare cases it may spread to other parts of the body, such as the lungs.
Symptoms
The most common symptom of endometriosis is cramping during menstruation, which can get worse over time, and can be debilitating.
The pain is due to internal bleeding from the lining being shed inside the body — in a place where it doesn’t belong — and can also lead to scar tissue formation, blocked fallopian tubes, and bowel problems, all of which I've had all the bloating and pain and constipation the worst, thank god for baggy clothes right?
Although many women experience some pain during their periods, women with endometriosis often say their menstrual pain is much worse than usual with me it's like my insides a being twisted, churned and ripped apart from the inside out, my ovaries feel like a soccer ball being kicked back and forth , and it increases over time.
Women with the condition may also experience pain while having sex, fatigue, painful urination or bowel movements during menstruation and gastrointestinal upset. Infertility and bleeding between periods are also symptoms of endometriosis.
Some women don't experience any symptoms at all, but realize they have the condition when they are unable to get pregnant.
It's a horrible incurable invisible illness that can only be diagnosed by laparoscopic surgery.
I've been in hospital like 30plus x in the last 6-8months, days where I haven't been able to get out of bed due to extreme pain and bleeding, I've had to leave work early cause of it. It's not pleasant at all, but I never stop fighting, I've lost 53kg in a 10 year period (a lot of that in the last 3years, and I've gained a whole new perspective on life.
I have scars I have lumps and I have chronic pain that in a few months I finially hope I get relief when I have recovered from surgery.
This will be a battle I fight for the rest of my life, and invisible illness that's totally real, I fight like a girl, I'm a endo warrior. WE NEED A CURE.
Also I'm not crazy even if at times I totally feel like it. It's REAL
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