ENDO NEEDS FUNDING

Posted by alirichardsblog on

So I wrote a email to prime minster and posted a blog post on my page better me endowarrior

Now I’ve started a petition

https://www.change.org/p/jacinda-ardern-get-more-funding-for-endometriosis

Please help us 120000 women and sign!!!

Hi there, I’m Ali I found out last year I have ENDOMETRIOSIS! Do you know what this is? Probably not !You have probably heard of asthma or diabetes. Those conditions affect the same amount of people in NZ as endometriosis. In the last ten years asthma received $46 million of funding, and diabetes $81m. Endometriosis received $0. It takes around 7 years for a diagnosis and that’s absolutely shocking,

1 in 10 women suffer this horrible incurable disease! 120000 women !!!! What is it it’s

When tissue similar to

The lining of the uterus grows outside in places like ovaries, bowels stomach and in rear cases the brain and lungs! It causes abdominal pain, bloating, abnormal bleeding heavy bleeding, infertility just to name a few symptoms ! IT HAS NO CURE ! I’ve started a page to help raise awareness, as so many women need to know they ain’t alone!

www.facebook.com/bettermeee. However I really think the government needs to put more money into endometriosis for funding, more research, there is no cure and most treatments ain’t long term options!!

it’s as common as diabetes or asthma yet hardly anyone knows what it is! I went to emergency room sometime in the last year one of many visits to get my pain under control and the doctor used GOOGLE to find out what it is,YES I said he googled it!!!  it’s horrible and we are made to think the pain is normal ! And we are somehow crazy and drug seeking when that’s far from the truth!

I’ve just had my surgey cancelled  for a hysterectomy, yes 34 and Believe this is my only hope at a semi normal pain free life, as the public health system has so many flaws, I’m hoping it now stays at the next date 23rd April in the hopes it may give me some relief from pain! It affects my day to day life! There is NO CURE for this disease it’s finding something that help ease the pain for a wee time even if it’s short term, a change of living a normal life doesn’t seem possible! But I try and keep positive!

Thanks ali

Sent from my iPhone

Published by alirichardsblog

Hey I'm Ali This is my blog about Weightloss and struggling with endometriosis..  There's so much more to endometriosis than meets the eye. Below the surface, living with endometriosis can mean days spent in bed, missed appointments, and alternate days when we seem "fine." We know that endometriosis comes with hundreds of possible combinations of symptoms, many of which appear invisible to outsiders. Most people don't know the many symptoms we experience. For 13 years I waited to get a proper diagnosis, first was appendix, then pcoc poly cystic ovaries, I lived with that diagnosis for years until a doctor said I didn't have it. The past year has been hell constant pain, and wasn't until July 29th 2016 a specialist said "endometriosis " I've heard of it but had no idea what it was, she put me on hormones and a lot of pain meds to try help ease some of the pain, we are talking 30 x in hospital getting called a drug addict and I need mental help but in September I had a mirena inserted which fell out 2months later due to heavy bleeding, and then on a wait list for surgery when that failed. So now Im 2 -3weeks post op, my surgery was march 9th 2017, stage 2 endometriosis was removed, I've also developed a post op complication a large lump on my left side above a wound site a haematoma and I had to go back to hospital. But anyway endometriosis is way more than what people think, and there needs to be more info about it and more people made aware that it's not normal to be in pain. Endometriosis is a medical condition that occurs when the lining of the uterus, called the endometrium, grows in other places, such as the fallopian tubes, ovaries or along the pelvis. When that lining breaks down, like the regular lining in the uterus that produces the menstruation, it has nowhere to go. This causes cysts, heavy periods, severe cramps and even infertility. And whole bunch more. The endometrial tissue may also grow in the vagina, cervix, bowel or bladder, and in rare cases it may spread to other parts of the body, such as the lungs. Symptoms The most common symptom of endometriosis is cramping during menstruation, which can get worse over time, and can be debilitating. The pain is due to internal bleeding from the lining being shed inside the body — in a place where it doesn’t belong — and can also lead to scar tissue formation, blocked fallopian tubes, and bowel problems, all of which I've had all the bloating and pain and constipation the worst, thank god for baggy clothes right? Although many women experience some pain during their periods, women with endometriosis often say their menstrual pain is much worse than usual with me it's like my insides a being twisted, churned and ripped apart from the inside out, my ovaries feel like a soccer ball being kicked back and forth , and it increases over time. Women with the condition may also experience pain while having sex, fatigue, painful urination or bowel movements during menstruation and gastrointestinal upset. Infertility and bleeding between periods are also symptoms of endometriosis. Some women don't experience any symptoms at all, but realize they have the condition when they are unable to get pregnant. It's a horrible incurable invisible illness that can only be diagnosed by laparoscopic surgery. I've been in hospital like 30plus x in the last 6-8months, days where I haven't been able to get out of bed due to extreme pain and bleeding, I've had to leave work early cause of it. It's not pleasant at all, but I never stop fighting, I've lost 53kg in a 10 year period (a lot of that in the last 3years, and I've gained a whole new perspective on life. I have scars I have lumps and I have chronic pain that in a few months I finially hope I get relief when I have recovered from surgery. This will be a battle I fight for the rest of my life, and invisible illness that's totally real, I fight like a girl, I'm a endo warrior. WE NEED A CURE. Also I'm not crazy even if at times I totally feel like it. It's REAL Follow me on Facebook: https://m.facebook.com/bettermeee/ Instagram: @bettermeee_83 Snapchat: @alicia20014.

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